Involvement Opportunities

Researchers at the Child and Adolescent Health Service are developing a research project that will examine the best dosage of probiotic supplements to give to sick newborn infants to correct the imbalance between good bacteria and bad bacteria in their gut. They are seeking parents of babies that have spent time in a Neonatal Intensive Care Unit (NICU) at King Edward Memorial Hospital and/or Perth Children’s Hospital to support them by sharing their insights, thoughts and experiences as research buddies.

Researchers are developing and implementing new diagnostics to guide the treatment of patients with asthma and chronic obstructive pulmonary disease. If you have lived experience of asthma and chronic obstructive pulmonary disease, we encourage you to apply to be a part of this Consumer Advisory Group. You will be part of a team of consumers who will use their lived experience of respiratory disease to advise the researchers.

The eye is a window into the body – This is an exciting research study investigating the use of non-invasive imaging techniques on the eye to detect any type of cancer in humans. If you have personal experience with a cancer diagnosis or a close relationship with someone who has been diagnosed with cancer, we encourage you to apply for this Research Buddy position.

Researchers from the University of Western Australia invite those with lived experience of a neurodevelopmental conditions to help them to find and fix the challenges to Medication Reviews for adults with neurodevelopmental conditions. We are looking for Research Buddies to work across all stages of this project to make sure that it is informed and guided by people with neurodevelopmental disability.

Have you been diagnosed with Type 1 diabetes in the last year?

Have you had a diagnoses of Diabetic Retinopathy?

Researchers are investigating early detection of diabetic retinopathy through non-invasive imaging of the eye and want to speak with consumers with and without a diagnosis to provide feedback to researchers on various aspects of the study such as recruitment, design, and translational relevance.

Do you have cystinosis?

Researchers at the University of Western Australia are seeking a Research Buddy who has lived experience with cystinosis to be involved in their exciting research project on a new gene that may be involved in cystinosis. Your lived experience will help to guide research aims for this project. You will share your experiences as a cystinosis patient or a parent/carer of a cystinosis patient, providing feedback on proposed research, and reading proposals to ensure they are in plain language and can be understood by the general community.

Will movement improve listening skills in children and adults with listening difficulties? Researchers would like your assistance to answer this question. As a research buddy, you will work closely with the researchers to ensure that their research is informed and guided by people with experience of listening difficulties or associated challenges.

Gaining insight into Sudden Infant Death Syndrome and Sudden Unexplained Death in Childhood.

We are seeking bereaved parents who have had a child die of undetermined causes and can relate to losing a child of either Sudden Infant Death Syndrome (SIDS) or Sudden Unexplained Death in Childhood (SUDC) to be a part of this Consumer Advisory Group.

Researchers from the Home2Health team at the University of Notre Dame Australia are looking for people to guide research examining cancer experiences in people experiencing homelessness or housing insecurity.