Involvement Opportunities

Oral cancer is affecting more Australians than ever before. We are inviting people who have been diagnosed with oral cancer to share their experiences and help us shape this discovery-science research project to explore disease in ways that are relevant, respectful and informed by lived experience. By learning more about these cancers and how they behave, we hope to develop better, more personalised treatments for future patients.

Perth Children’s Hospital (PCH) would like to hear from parents, carers and children with cerebral palsy (CP) who have previously had orthopaedic surgery at PCH. The team at PCH would like to work together with families and children to re-design educational resources and information provided to families to help them prepare for surgery. No prior research experience is required.

We are seeking individuals with lived experience of pancreatic cancer (as a patient, survivor, family member, or carer) to partner with our cancer research team. The team is developing new software to better understand how different cells in pancreatic cancer communicate with each other. You do not need any scientific, medical or computer programming knowledge. We are looking for your lived experience and perspective to help keep the research focused on what matters most to people affected by pancreatic cancer.

Have you, or someone you care for experienced acute kidney injury, chronic kidney disease, dialysis, or kidney complications following heart surgery? We are looking for people with lived experience to join the research team as a Research Buddy and help shape a project aimed at identifying people at risk of kidney injury before cardiac surgery.

Help Improve Care for Older Trauma Patients – Make a difference with your lived experience

Have you or someone you care for experienced a serious injury and hospital treatment at the State Trauma Unit? Your insights can help shape better care for older people across Western Australia. We are inviting older adults, carers, and family members to join an important research project improving how trauma care is delivered.

Researchers want to understand how the oral health of older adults affects their daily lives and wellbeing. They would like people with lived experience to help with the development of a new oral health-related quality of life tool. This is part of an international study to better understand oral health and quality of life.

The Ben Beale Laboratory for Cardiovascular Research at The University of Western Australia invites people living with or care for someone living with Hypertrophic Cardiomyopathy (HCM) to register their interest in contributing to their research as a Community Partner. During the 5 years of this research project there will be various ways to be involved.

High-risk neuroblastoma is a fast-growing childhood cancer that can be difficult to treat. Even with current treatments, some children experience a relapse, and long-term cures are not always possible.

We are looking for parents and caregivers of children affected by neuroblastoma to share their experiences and perspectives. Your insights will help guide the research by identifying what matters most to children, families, and caregivers living with neuroblastoma, and by ensuring future research focuses on their needs and priorities.

Can a specialised PET camera detect Infection and inflammation?

Researchers are developing a specialised PET scan that may detect infections and inflammation anywhere in the body, including cases that cannot be identified through standard imaging or blood tests. Through collaboration with experts from St Jude’s hospital in Memphis, Tennessee, the project aims to improve earlier diagnosis, treatment decisions, and antibiotic use. Consumers will work alongside the research team to provide lived experience insights, help guide study design, review materials, and support the translation of this promising technology into healthcare practice.

Have you had early screening for Cancer (bowel, breast, lung cancer etc.)? Would you prefer to have this screening done once rather than multiple different cancer screening tests?

This research represents a first step in developing a non-invasive cancer screening test that can detect multiple different subtypes at once. The current cancer screening landscape is organ-specific, meaning individuals often need to undergo multiple different cancer screening tests in order to complete a comprehensive screen.