Involvement Opportunities

Have you, or someone you care for experienced acute kidney injury, chronic kidney disease, dialysis, or kidney complications following heart surgery? We are looking for people with lived experience to join the research team as a Research Buddy and help shape a project aimed at identifying people at risk of kidney injury before cardiac surgery.

Perth Children’s Hospital (PCH) would like to hear from parents, carers and children with cerebral palsy (CP) who have previously had orthopaedic surgery at PCH. The team at PCH would like to work together with families and children to re-design educational resources and information provided to families to help them prepare for surgery. No prior research experience is required.

High-risk neuroblastoma is a fast-growing childhood cancer that can be difficult to treat. Even with current treatments, some children experience a relapse, and long-term cures are not always possible.

We are looking for parents and caregivers of children affected by neuroblastoma to share their experiences and perspectives. Your insights will help guide the research by identifying what matters most to children, families, and caregivers living with neuroblastoma, and by ensuring future research focuses on their needs and priorities.

We are seeking a Research Buddy with lived experience or a close understanding of the challenges children with low motor competency experience, such as a parent or carer of a child with Developmental Coordination Disorder. The Research Buddy will work with the research team to provide feedback on study materials, and ensure the research and future intervention are meaningful, accessible and relevant for families.

The RESOLVE-SHOCK research team invites people with lived experience of being critically ill in an Intensive Care Unit (ICU), who have had shock (very low blood pressure) or sepsis, along with their family members and carers. Our goal is to use hospital data and blood samples to better understand why some patients recover while others deteriorate, in order to develop more targeted treatments. We are looking for partners to work alongside researchers at all stages of this project. Your unique insights will be essential to help shape our research questions, inform the study’s design, and ensure our findings are shared in a way that is meaningful to patients, families, and the wider community.

We are seeking Research Buddies to help shape a study that aims to examine the effects of the transition from paediatric diabetes to adult diabetes services. Research Buddies will work alongside clinicians to help define the most important observations to monitor during the transition process, establish a method for approaching and following up with young people who have recently completed their transition to adult services.

We are looking for women with lived experience of cardiovascular disease to join our research team as Research Buddies. In this role, you will partner with researchers and share your experiences, perspectives, and feedback throughout the project. You will be asked to review documents (e.g., grant applications, consent forms, surveys) and share your lived experience and insights. Your input will help ensure the research stays focused on the needs, priorities, and experiences of women living with heart disease, ultimately helping us improve how heart disease is diagnosed and treated in women.

Be Part of the Loop: Using Real-World Experiences and Insights to Improve Cancer Care

Researchers want to understand how the oral health of older adults affects their daily lives and wellbeing. They would like people with lived experience to help with the development of a new oral health-related quality of life tool. This is part of an international study to better understand oral health and quality of life.

Researchers at the University of Western Australia and the Lions Eye Institute are seeking people with lived experience of Visual Snow Syndrome (VSS) to be a part of a Micro Community Conversation. Share what visual symptoms bother you, the visual tasks you have difficulty with, and your thoughts on vision research about VSS. This will help guide our research program on visual processing in VSS. The date of the Micro community Conversation is to be determined.