Insights to Improve Cancer Care

We are seeking people with lived experience of cancer, as well as family members and carers, to join this project as Research Buddies.

As a Research Buddy, you will work alongside researchers at the beginning of an important long-term initiative aimed at developing an integrated cancer data registry. The project seeks to better understand patient experiences, treatment pathways and health outcomes to help improve cancer services over time.

Your input will help ensure the project remains relevant, understandable and focused on the needs and priorities of people affected by cancer.

About the Opportunity

As a Research Buddy, you will contribute a valuable community perspective by:

Sharing your experiences and insights as a patient, family member or carer
Reviewing survey questions and research materials
Providing feedback on participant information sheets and consent forms
Helping identify the outcomes that matter most to patients, families and carers
Advising researchers on how health information should be collected and used in ways that are meaningful and trustworthy

Your feedback will help shape the design of a larger future project focused on improving cancer care and patient outcomes.

Who Can Apply?

We are looking for:

People who have experienced cancer care within Western Australia
Family members or carers who have supported someone through the cancer care journey
Individuals who are comfortable sharing their views and participating in group discussions
People interested in helping improve cancer care for future patients and families

Experience with radiation therapy services would be particularly valuable, although all oncology lived experience is welcome.

What Will Be Involved?

You will be asked to:

Attend approximately 3–4 meetings with the research team
Review documents and provide feedback between meetings when required
Share lived experience perspectives and ideas
Participate over an estimated six-month period

Meetings will run for approximately one hour and involvement can be adapted to suit your availability.

Meeting Options – You can join:

Online via Zoom
In person at the QEII Medical Campus
At another mutually agreed location
Through a combination of online and in-person meetings, depending on your preference
Reimbursement and Support

Why Get Involved?

Your experiences can help researchers understand what matters most to people affected by cancer. By becoming a Research Buddy, you can help ensure future cancer research is guided by real-world experiences, addresses community priorities and contributes to better care for patients and families across Western Australia.

If you have lived experience of cancer as a patient, family member or carer and would like to contribute to improving cancer care, we encourage you to submit an expression of interest.

What Support Is Offered?

An honorarium of $50.00 per hour is available for consumer involvement activities in line with CCIProgram guidelines
Training and support provided by the CCIProgram

Web form to create Applications

Submitting this form will create Applications

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