Resources
We provide a number of resources which reflect the importance of consumer and community involvement in health research. These resources include training opportunities for consumers, community members and researchers, reports summarising the outcomes of our involvement opportunities, journal publications, tools and useful links.
eCourse, Tool Kits and Guidelines
CCI and Grant Writing free online e-Course
CCI in Health Research free online eCourse
WAHTN CCI Handbook
CCIProgram Honorarium Guidelines (updated September 2024)
CCIProgram COVID Health and Safety Guidelines
National Health and Medical Research Council’s Consumer Involvement Guidelines
Cancer Australia's Consumer Involvement Tool Kit
NSW Regional Health Partners Tools for Consumer Involvement
National Institute for Dementia Research Consumer Involvement in Research
Australian Clinical Trials Alliance Consumer Involvement and Engagement Toolkit
Cochrane Consumer Engagement Priority Review
National Mental Health Commission Consumer and Carer Engagement: a Practical Guide
National Health and Medical Research Council’s Engaging Aboriginal and Torres Strait Islander people in guideline development
Melbourne Academic Centre for Health Tools and Resources for Researchers
Victorian Comprehensive Cancer Centre Consumer Engagement Toolkit
Western Australian Department of Health You Matter: A guideline to support engagement with consumers, carers, communities and clinicians in health
Reports
The Menopause Transition: Community Conversation Report (2024) by Dani Barrington, Dorinda 't Hart, Carey Button and Briony Abraham
enAble Institute: All Abilities Community Conversation Report (2024) by Deb Langridge, Caroline Jones and Briony Abraham
Breast cancer screening: Increasing participation and understanding risk - Community Conversation Report (2024) by Dorinda 't Hart, Jennifer Stone and Briony Abraham
Exploring changes to cognitive function and movement with health ageing - Community Conversation Report (2024) by Caroline Jones, Ann Maree-Vallence, Laura Farkas and Briony Abraham
Nutrition Health Innovation Research Institute (NHIRI) Future Research Priorities: Research Priority Mapping Workshop Report (2023) by Jillian Northwood, Deb Langridge and Briony Abraham
Exploring barriers and motivators for research participation in burn survivors: Community Conversation Report (2023) by Ms Aleksandra Miljevic, A/Prof Ann-Marie Vallence and Jillian Northwood
Towards Personalised Assessment and Treatment of Long‐COVID: Community Conversation Report (2022)
Centre for Molecular Medicine & Innovative Therapies (CMMIT)- Community Conversation Report (2022) by Jillian Northwood, Deb Langridge and Briony Abraham
Outpatient Reform Program - Community Conversation Report (2022) by the Department of Health (WA)
WA Comprehensive Cancer Centre Community Conversation Report (2021) by Deb Langridge and Kat Stewart
Value Based Healthcare Community Conversation Report (2021) by Alison Verhoeven
Consumer and Community Involvement Program Year in Review Report (2019 - 2020) by Deb Langridge
Knocking Down Barriers to a Healthy Diet: Community Conversation report (2021) by Caroline Hill, Amanda Devine, Lauren Blekkenhorst, Reindolf Anokye and Corinna Musgrave
St John Urgent Care Centre: Community Conversation Report (2020) by Briony Williams
Survey of CCI Program Community Members' Attitudes to COVID-19 Research and Consent (2020) by Ben Horgan and Kerry Maclaurin
The link between Hearing Loss, Dementia and Mental Health Community Conversation Report (2019) by Donna M.P. Jayakody, Elizabeth Foster, Hanadi Tarawneh, Hadeel Tarawneh and Ben Horgan
Kids Immune Development Community Conversation Report (2019) by Deb Strickland, Elysia Hollams and Tanya Jones
Road Safety Community Conversation Report (2019) by Torbjorn Falkmer, Matt Albrecht, Melissa Black and Ben Horgan
Involving Consumers in the Cancer Epidemiology Network (2019) by Sonia El-Zaemey, Renee Carey, Terry Boyle, Jennifer Stone, Elizabeth Milne, Alison Reid and Lin Fritschi
Consumer and Community Involvement in Health and Medical Research: An Australia-wide Audit (2018) by Join Project Leaders – Sydney Health Partners and the Western Australian Health Translation Network
Horizon Scanning Series: The Future of Precision Medicine in Australia Consumer Engagement (2018) by Avnesh Ratnanesan, Daniel Damiano, Matthew Tice, Matt Riemann, Yang Jiao and Kiran Nair
Involving Health Consumers in Health and Medical Research: Enablers and Challengers from a Consumer Perspective (2017) by Janelle Bowden and Anthony Brown from Research4Me and Health Consumers NSW
Videos & Recordings
Visit the CCIProgram YouTube Channel
CCIP Video Series (2020 - 2021)
- Consumers using their voices in research
- Consumer and Community Involvement Program - What We Do
- Why Researchers involve Consumers in Research
- Driving Consumer and Community Involvement
Other Videos and Recordings
Journal Articles
The impact of patient involvement in research: a case study of the planning, conduct and dissemination of a clinical, controlled trial (2020) by Pernille Christiansen Skovlund, Berit Kjærside Nielsen, Henriette Vind Thaysen, Henrik Schmidt, Arnstein Finset, Kristian Ahm Hansen and Kirsten Lomborg
Consumer Engagement in Aged Care: Literature Review (2019) by the Aged Care Quality and Safety Commission
Involving consumers in health research: what do consumers say? (2018) by Angela L Todd and Don Nutbeam
Consumer engagement critical to success in an Australian research project: reflections from those involved (2018) by Annelise J. Synnot, Catherine L. Cherry, Michael P. Summers, Rwth Stuckey, Catherine A. Milne, Dianne B. Lowe and Sophie J. Hill
Service user reflections on the impact of involvement in research (2018) by Jim Gordon, Sue Franklin and Sabrina A. Eltringham
Integrating consumer engagement in health and medical research – an Australian framework (2017) by Caroline L. Miller, Kathy Mott, Michael Cousins, Stephanie Miller, Anne Johnson, Tony Lawson and Steve Wesselingh
Asking what matters: The relevance and use of patient-reported outcome measures that were developed without patient involvement (2017) by Bianca Wiering, Dolf de Boer and Diana Delnoij
Partnering with consumers: national standards and lessons from other countries (2015) by Stephen D. Gill and Melinda Gill
Two Methods for Engaging with the Community in Setting Priorities for Child Health Research: Who Engages? (2015) by Wayne Rikkers, Katrina Boterhoven de Haan, David Lawrence, Anne McKenzie, Kirsten Hancock, Hayley Haines, Daniel Christensen and Stephen R. Zubrick
'The missing links': understanding how context and mechanism influence the impact of public involvement in research (2012) by Kristina Staley, Sarah A. Buckland, Helen Hayes and Maryrose Tarpey
Other Publications
Medical Research Future Fund Research Principles for Consumer Involvement Webinar presentation (3 August 2023)
How should Australia make the most of consumer participation in health services research? (2018) by Jonathan Karnon
Consumer Involvement in Australian Medical Research is Growing (2018) by Sydney Health Partners
Health Research and Consumers: Good Thinking (2018) by the Consumers Health Forum of Australia
Useful Links
WA Comprehensive Cancer Centre website
ConnectGroups website
Briefing notes for researchers by NIHR | INVOLVE
Library of Examples Exploring the Impact of Public Involvement in Research by NIHR | INVOLVE
Plain English Summaries by NIHR | INVOLVE