HYPE Pilot Study - Consumer Reference Group

About the project/involvement opportunity

Individuals with a lived experience of major surgery, as a patient or a carer, are invited to join the HYPE Pilot Study Reference Group.

The HYPE Pilot Study is a clinical trial of the medication Roxadustat tablets and it’s use for surgery. The results will show whether Roxadustat is safe and effective, and whether a large international trial is feasible.

Consumer involvement is sought to improve patient documentation, participation rates, the study design and effective communication of results to the wider community.

What am I expected to do?
Involvement tasks as a reference group member will vary according to personal preference but may include:

Reviewing information sheets, consent forms, plain language summaries, grant applications and research documentation (by email or mail).
Providing advice and informing decision making around trial design (by teleconference).
Participating in regular trial committee meetings (usually teleconference, sometimes in person).
Associate Investigator for grant applications.

What skills or experience do I need?
A lived experience of major surgery, as a patient or a carer.

How long am I expected to be involved?
1-2 Years.

Where will meetings be held?
Online or at Royal Perth Hospital.

What support is offered?
$37.50 per hour honorarium. Training and support is offered by the Consumer and Community Involvement Program.

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HYPE Pilot Study – Consumer Reference Group

Web form to create Applications