Help Shape Cystic Fibrosis Infection Research

About the Project and the Involvement Opportunity

This research aims to find new ways to disarm harmful bacteria that cause lung infections in people with cystic fibrosis. We are studying a specific bacterial protein that helps bacteria establish infection. By targeting this protein, we hope to make the bacteria less able to cause disease.

Bacterial lung infections can be life-threatening and may require intensive antibiotic treatment. Input from people with cystic fibrosis, particularly those who have experienced these infections, is important. Their lived experience can help us ask relevant questions, focus on what matters to patients and guide research towards better ways to prevent and treat these infections.

About the Position

We are seeking a Research Buddy to work closely with the research team during the planning and development stages, ensuring the research fits consumers’ needs.

What Am I Expected to Do?

Attend regular meetings with the research team (e.g., monthly or quarterly)
Review documents (e.g., grant applications, consent forms, surveys)
Share your lived experience and insights

What Skills or Experience Do I Need?

We are seeking a young person with Cystic fibrosis or a carer who has lived experience with bacterial lung infection. No research experience is required. Ideally, you will feel comfortable sharing your views in a group discussion and using Zoom or Microsoft Teams.

How Long Am I Expected to Be Involved?

This project is at the planning and development stage, and we anticipate 1-2 hours every 2 months for 6 months with occasional emails in between.

Where Will Meetings Be Held?

A mix of in-person and online, depending on consumer preference

What Support Is Offered?

An honorarium of $50.00 per hour is available for consumer involvement activities in line with CCIProgram guidelines

Training and support provided by the CCIProgram or relevant support body.

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