About the Project and the Involvement Opportunity
Cancer is an ongoing epidemic that affects millions of Australians every year. Additionally, some subtypes such as bowel cancer, have seen rising rates in younger populations. Early screening remains the most effective intervention to improve survival rates, however existing cancer screening paradigms are fragmented, invasive, and often inadequate at capturing very early-stage disease.
We are inviting individuals who have lived experience of the cancer screening and diagnosis journey, as well as individuals who have close friends and family with similar experiences. Insights gained from this initiative will help researchers develop screening initiatives tailored specifically to patients.
This involvement opportunity seeks to recruit individuals that have experienced the current cancer screening paradigm (bowel, breast, lung cancer screening etc.), as well as those with close friends and family who have done so. You do not need to have a formal diagnosis of cancer to participate in this initiative.
Consumer involvement in this study is essential as it will guide the research team in the project design, implementation, and ultimately dissemination of findings amongst the wider community.
About the Position
Consumers will be required to attend regular quarterly meetings with the research team to integrate their lived experiences in all phases of research planning, recruitment, and implementation. Consumers who are interested may also be asked to participate in the research itself, which would involve a one-hour appointment at the Lions Eye Institute Nedlands. Participation in the research study not an essential requirement and completely at the discretion of the consumer.
What Am I Expected to Do?
- Attend regular meetings with the research team (e.g., monthly or quarterly)
- Share your lived experience and insights
- Help design participant recruitment strategies
What Skills or Experience Do I Need?
We are specifically seeking individuals who are carers for or have a close relationship with individuals who have been diagnosed with cancer. We also would like to include individuals with a diagnosis of cancer (any) and have previously experienced the current screening/diagnostic pathway.
No prior research experience is required however individuals should be comfortable speaking in small group settings and should be familiar with Zoom/Teams.
How Long Am I Expected to Be Involved?
We anticipate meeting with our consumer advisory group for 1 hour every 3 months until December 2027. Occasional emails in between are to be expected. Flexible participation is supported.
Where Will Meetings Be Held?
In person at the Lions Eye Institute Nedlands
What Support Is Offered?
- An honorarium of $50.00 per hour is available for consumer involvement activities in line with CCIProgram guidelines
- Training and support provided by the CCIProgram or relevant support body.
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