Interested in secondary use of data for Australian research?
Invitation to take part in ACTA’s consultation on behalf of the ARDC
The Australian Clinical Trials Alliance (ACTA) is working with the Australian Research Data Commons (ARDC) to gather insights and feedback about the Health Studies Australian National Data Asset (HeSANDA), an initiative that aims to build a national collection of data generated through Australian health research and support appropriate and ethical sharing of the data with other Australian researchers. By supporting secondary use of data from health research, HeSANDA aims to stimulate new research ideas, increase the impact of health research, increase the benefits of investment in health research, and ultimately improve the health and wellbeing of people in Australia.
They are interested in hearing from consumers who are or have been involved in the design and/or conduct of clinical trials, and clinical trial participants (people who have taken part in, are taking part in or are considering taking part in a clinical trial).
How you can have your say
First, read the background paper and/or watch this webinar recording to understand the background and context of this consultation.
Then, have your say on the HeSANDA initiative in one of two ways:
- Attend a 90-minute virtual consultation workshop on June 16th or 21st. Register here (workshop numbers are limited). Consumers and Research Participants who join the consultation will be reimbursed for your contribution. ACTA will discuss the details with you further after your EOI has been received.
- Or, complete this online survey.