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Understanding How Genes and Metabolism Influence Alzheimer’s Risk – Consumer Advisory Group

Researchers at the Australian National Phenome Centre are looking to form a Consumer Advisory Group (CAG) to provide valuable lived experience input into a research project critical for understanding the fundamental biological processes that lead to Alzheimer’s disease. This research seeks to determine why people are susceptible to Alzheimer’s Disease as they age with the CAG members having ongoing involvement throughout all aspects of the research project.

About the project and the involvement opportunity
This project is part of the efforts research is undertaking to understand why some people are more likely to get Alzheimer’s disease as they get older. We don’t fully know why this happens, but we do know that certain genes can increase the risk. This project will look at how these genes affect the body’s basic processes. By understanding how these genetic changes influence metabolism, we hope to find new ways to treat or slow down the disease. Understanding these connections better could help researchers find new treatments that can change how the disease develops.

About the position
We are looking for 4 members with lived experience of caring for a person with Alzheimer’s disease to join the Consumer Advisory Group, to provide important consumer perspectives for research directions and priorities. As a Consumer Advisory Group member, you will contribute, along with other CAG members, your lived experience expertise will help inform and guide research, providing feedback and suggestions.

What am I expected to do?

  • Meet with researchers 3 times a year
  • Help researchers understand the needs and concerns of consumers from a lived experience perspective, informing the research process.
  • Supporting the sharing of research findings

What skills or experience do I need?

  • Current or past lived experience of caring for a person with Alzheimer’s disease (this can be spouse, children caring for parents, care providers)
  • Provide open and honest opinions and have constructive discussions with researchers and other community members
  • Ability to effectively communicate in both written and spoken conversation
  • Critical thinking skills and attention to detail
  • Have an interest in improving health outcomes for people with Alzheimer’s disease

How long am I expected to be involved?
Consumer Advisory Group members will be appointed for up to 2 years.

Where will meetings be held?
Murdoch University: 90 South Street, Murdoch

What support is offered?
$37.50 per hour honorarium. Training and support is offered by the Consumer and Community Involvement Program.

Please complete the application form below.

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