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Type 1 Diabetes – Distress, Health Literacy & Self-Management

About the project and the involvement opportunity

We have already consulted with a group of consumers on Self-Managing their Type 1 Diabetes via a survey. We measured diabetes self-management patterns (self-reported from the previous 2 weeks), their use of diabetes technology, self-efficacy, active coping, health literacy, and diabetes related distress. We found some associations between coping style and distress, and self-efficacy. We would now like to explore this further to understand what this could mean in terms of our practice and service delivery to those living with Type 1 Diabetes.

In the second part of our research, we want to understand a way to better support adults with type 1 diabetes which relates to personal diabetes self-management, for people who are experiencing greater distress, or higher glucose levels (Hba1c above 8%). The criteria for inclusion in this study includes adults aged between 18 and 50 years, who have had type 1 diabetes for at least one year.

Our research team includes an Endocrinologist and Clinical Psychologist with behavioural science expertise, who will provide support and guidance to the credentialed diabetes nurse educator throughout the intervention phases. This is to ensure the intervention approach is delivered in such a way that it consistently incorporates principles of behavioural science, while being personalised.

About the position

The research team would like the assistance of two research buddies with a lived experience of Type 1 Diabetes to assist them with the project, to bring a consumer perspective to the project.
Assistance with promotion, interpreting learnings and further refining the method is also required.

What am I expected to do?

Attend four informal meetings with the research team over approximately 18 months.

What skills or experience do I need?

Living with type 1 diabetes for more than one year. Willing to work with the researcher to develop a method of diabetes education consultation that helps clinicians to better understand how to acknowledge and address the emotional impact of living with type 1 diabetes.

How long am I expected to be involved?

18 months.

Where will meetings be held?

Via Microsoft Teams or in person at Harry Perkins south at the Fiona Stanley hospital campus.

What support is offered?

$37.50 per hour honorarium. Training and support is offered by the Consumer and Community Involvement Program.

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