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Identifying Cirrhosis and liver Cancer in primary Care

About the project and the involvement opportunity
Australia does not currently have a program to check liver health. Our trial, the Identifying Cirrhosis and liver Cancer in primary Care (IC3) trial will test a program based in general practice that checks people’s liver health to see if they need to see a specialist (hepatologist) or enter a screening program for complications of liver disease. We will be recruiting nearly 3000 people across Australia to test this program. We hope that the results of this research will provide a pathway to help manage people at higher risk of liver cancer and create opportunities for earlier diagnosis and better survival.

About the position
We are looking for up to 8 members from all over Australia, who have a lived experience of liver disease, cirrhosis and/or liver cancer to join this Community Advisory Group. This plays an important role in providing advice on consumer relevant matters and to act as an advocate for this research study.

What am I expected to do?
o Attend Community Advisory Group meetings (up to 4/year via Zoom)
o Help review written materials for trial participants i.e. plain language statements, recruitment posters, consent forms
o Help create materials that promote trial results to both participants and the public
o Help to trouble shoot any consumer relevant challenges that may come up during the trial

What skills or experience do I need?
A lived experience of liver disease, cirrhosis and/or liver cancer. We are also looking people with experience of caring for someone with liver disease, cirrhosis or liver cancer. We are looking for people with an open mind and willingness to partner with us to make this trial the highest-quality research it can be. Any non-medical skills that can help to improve the consumer relevance of our research or to communicate, network or advocate for this research.

How long am I expected to be involved?
Up to 4 years. We understand that 4 years is a long time to commit and that may not be possible for all consumers. People who would be able to commit to at least 1-2 years are also very welcome to apply.

Where will meetings be held?
Online via Zoom. There may be some opportunities for face-to-face meetings. In these instances, all travel and extra costs will be paid for by the trial.

What support is offered?
$37.50 per hour honorarium. Training and support is offered by the Consumer and Community Involvement Program. Additionally, this trial is supported by the Primary Care Collaborative Cancer Clinical Trials Group (PC4) and its Community Advisory Group. This group of experienced consumers are available to provide help and support the IC3 Trial Community Advisory Group. PC4 also hosts a number of resources for consumer members on its website. Lastly, members will also be able to attend any PC4 consumer training events.

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