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Exploring new therapies for Alzheimer’s disease – Research Buddy

About the project and the involvement opportunity

Our research group is studying whether new treatments can help change how certain genes linked to Alzheimer’s Disease act. Alzheimer’s is a brain illness that makes it hard to remember and think clearly. Understanding the genes behind Alzheimer’s could help us find better ways to treat it.

We’re testing if these new treatments can alter the behaviour of these genes. If successful, these treatments might slow down or stop Alzheimer’s from getting worse. We’re carefully studying to make sure these treatments are safe and effective. Our hope is that this research leads to better ways to help people with Alzheimer’s and their families.

About the position

Researchers are seeking two research buddies to join our research team to inform and provide a lived experience perspective to the overall project.  As a research buddy, your lived experience expertise will help inform and direct research protocols, procedures, and project feasibility.  Additionally, we will seek your feedback and suggestions regarding project documents and materials.

What am I expected to do?

As a research buddy you will work closely with researchers on specific projects and provide them with guidance, support and advice across the entire project. The guidance and support with be about research grant applications and plain language summaries. Additionally, Research buddies will provide a link between consumers, community and researchers across the project, providing input to develop strategies to inform the wider community about the research of the group and guidance and expertise on consumer and community issues and research priorities.

What skills or experience do I need?

  • Current or past lived experience of caring for a person with Alzheimer’s disease (this can be spouse, children caring for parents, care providers)
  • Critical thinking skills
  • Attention to detail
  • Willingness to provide feedback, comments, and suggestions for project documents
  • Ability to effectively communicate in both written and spoken conversation

While formal qualifications are not required, a research buddy’s personal experience, empathy, communication skills, and commitment to the research project are key attributes that can greatly enhance the project’s success and impact.

How long am I expected to be involved?

Research buddies will be appointed for 1-3 years depending on the course of the project.

Where will meetings be held?

Research Buddies will meet with the project teams (ad-hoc, or quarterly depending on your availabilities). Meeting can be in person at Murdoch University or online via MS teams or equivalent, depending on the preference and requirements of the Research Buddy.

What support is offered?

$37.50 per hour honorarium. Training and support is offered by the Consumer and Community Involvement Program.

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