About the project and the involvement opportunity
CMMIT is increasingly focusing on child health and is now wishing to establish a focused Parent Advisory Group of parents and carers who can speak into, and on behalf of, their children who have a lived experience of Familial Hypercholesterolaemia, Muscular Dystrophy and Psoriasis.
Ideally, This Child Health Parental Advisory Group will comprise 3 parents or carers representing their children, to provide guidance to researchers involved in child health research across CMMIT. To achieve this, the research team would like this group to provide input and feedback on the research strategies to ensure their work is relevant, practical and feasible.
About the position
The research team are looking for parents and carers of children with a lived experience of Hypercholesterolaemia, Psoriasis and Muscular Dystrophy, as well other inherited disorders to form a Parent Advisory Group. The research team encourages diversity within the Consumer Advisory Group and welcomes applications from parents or carers of children under the age of 18 years, and all cultural backgrounds.
What am I expected to do?
Members of the Community Advisory Group will be asked to provide feedback at all stages of the process, including, but not limited to:
- Identifying areas of research need
- Assist with planning for individual research projects
- Reviewing research proposals
- Assisting with dissemination of research findings (i.e. development of wording on flyers).
What skills or experience do I need?
You need to be a parent or carer of a child under the age of 18, who lives with either psoriasis, muscular dystrophy or familial hypercholesterolaemia. You should be comfortable in a group setting and have an interest in childhood-related research.
How long am I expected to be involved?
The Parent Advisory Group will meet quarterly over two years, with meetings taking no longer than two hours. Additional ad-hoc meetings could be scheduled with the Group’s agreement. Additional communication could take place via email.
Where will meetings be held?
Meetings will be held at The Centre for Molecular Medicine and Innovative Therapeutics at Murdoch University and members can choose to attend meetings in person or via online video-conferencing.
What support is offered?
You will be offered a $35/hour honorarium. Both the research team and the Consumer and Community Involvement Program will be available to offer any support and training required.
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