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Personality and behaviour changes in brain cancer patients – Supporting patients and their carers

About the project

This project will explore what interventions/psychosocial treatments people with brain cancer used to manage personality and behaviour changes, how effective these interventions or treatments were, and what could be done to better support patients and their carers.

This will be achieved by looking at what research has been done in this area, interviewing people with brain cancer and their carers to learn about their experiences, and interviewing health professionals to understand what management strategies are currently offered.

It is hoped that by having a clearer understanding of the existing management strategies, how useful or effective they are and what carers need, in the future, we will be able to tailor support that help individuals and their families to manage tumour related personality and behaviour changes and improve quality of life.

About the position

We are looking for 3 carers of people with brain cancer to be part of the research team. As this research is focused on brain tumour related personality and behaviour changes, ideally we are looking for carers of patients with brain cancer who have experienced personality or behaviour changes (e.g., irritability, anger, paranoia, apathy, emotional lability etc) since receiving their diagnosis or treatment.

What am I expected to do?

  • We would like you to provide advice on how the researchers intend to carry out the project
  • how the researchers can best involve people with brain cancer and their carers
  • the wording of our interview questions
  • the design and language used for the plain language summaries, patient information sheets and consent forms

How long am I expected to be involved?

12-24 months through to 2023

Where will meetings be held?

Meetings will be based at Curtin University’s Bentley campus or remotely via telephone or Zoom if that is more convenient. The first meeting will be held late in 2021. Depending on your interest and availability, there will be opportunities to continue involvement with the project.

What support is offered?

$35 per hour honorarium is paid. Training and support is offered by the Consumer and Community Involvement Program.

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