Exploring real-world experiences to guide the development of personalised medicines for individuals with rare genetic conditions

Ref: MUR20665 Date: 9 April 2025, 6:00 pm - 8:00 pmLocation: Murdoch University: 90 South St, Murdoch - Boola Katitjin

Researchers from The Molecular Therapy Laboratory at Murdoch University would like to hear from people with a lived experience of a rare genetic condition. To hear about your experiences and knowledge in navigating treatment options, as well as your interest in participating in the development of personalised medicines. The information gathered will guide the development of educational resources, and support families in understanding the benefits and limitations of emerging personalised medicines. The insights we gather will also inform the direction of our research.

Experience required of attendees:

People with a rare genetic condition or those who care for someone with a rare genetic condition.

Prior to the start of the Community Conversation, a tour of the Personalised Medicine Centre laboratory is offered to any attendees who are interested.

A $70 honorarium (gift card) is offered to attendees and light refreshments will be provided.

Web form to create Applications

Submitting this form will create Applications

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